BFM 89.9

HIGHLIGHTS 
Podcast  >  Bigger Picture  >  Health & Living  >  Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

03-Oct-22 16:00

Budget 2023: We Need To Invest in Rare Diseases

There are more than 7,000 types of rare diseases, yet the interest and investment into rare diseases are often limited to a handful of more well-known diseases. For people living with rare diseases and their families, the journey from diagnosis to accessing treatment can take a huge emotional and financial toll. Ahead of the tabling of Budget 2023, we speak to Nadiah Hanim Abdul Latif, President of the Malaysian Rare Diseases Society and Prof Dr Thong Meow Keong, consultant paediatrician and clinical geneticist from UMMC on how we can do better to support the rare disease community in Malaysia and whether we’ll finally see rare diseases being on the priority list. 

Brought to you by Mah Sing. Reinvent Spaces. Enhance Life.

Click here to view a transcript of the show.

Image credit: Shutterstock

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann


This and more than 60,000 other podcasts in your hand. Download the all new BFM mobile app.

Categories:  managing diseasemedical advances

Tags:  genetic counsellorsrare diseaseorphan drugsgeneticsbudget 2023belanjawan 2023Budget-2023-Mahsing





Play / Pause

Listen now : Opening Bell: (REPEAT) Tim Mulholland of President, TJM Limited, Chicago tells us...

Today’s Shows



6:00 AM

The 6AM Stretch

Thought-provoking discussions on ideas, people and events shaping our lives.

7:00 AM

World Market Watch

Tim Mulholland of President, TJM Limited, Chicago tells us where international markets are heading.

7:15 AM

Morning Brief

We recap global and local headlines from today's papers and portals.

7:30 AM

Morning Brief

Selena Ling, Chief Economist, OCBC Bank tells us what Trump's 'reciprocal tariffs' mean for Asian economies.

7:45 AM

Morning Brief

Dan Ives of Wedbush Securities discusses the impact of Donald Trump’s sweeping tariffs on the tech industry.

8:00 AM

The Breakfast Grille

Norazlam Norbi, CEO of Sumisaujana Group Berhad discusses the company’s ACE Market debut on April 9, with RM74 million from the IPO fueling expansion, digital transformation, and infrastructure.

8:30 AM

Morning Brief

Dr. Law Teik Hua from Universiti Putra Malaysia explains how the upcoming point-to-point system, could improve road safety.

8:45 AM

Morning Brief

(Repeat) We dive into the local and international news that matters to you.

9:00 AM

Opening Bell

(REPEAT) Tim Mulholland of President, TJM Limited, Chicago tells us where international markets are heading.

9:15 AM

Opening Bell

(REPEAT) We take a look at the FBM KLCI as well as regional capital markets.

9:35 AM

What's The Focus

We wrap up the week’s biggest conversations to keep you in the know.

10:05 AM

Open For Business

Dean Yeong, Co-Founder, Wolo Yoga

11:00 AM

Mattsplained

Matt Armitage, Founder, Kulturpop

12:00 PM

Enterprise Explores

1:00 PM

The Breakfast Grille Repeat

Norazlam Norbi, CEO of Sumisaujana Group Berhad discusses the company’s ACE Market debut on April 9, with RM74 million from the IPO fueling expansion, digital transformation, and infrastructure.

2:05 PM

Discovery Hour

The 3rd episode of "There's No Planet B" explores climate governance, and why international policies have failed to enact change, with Dr Helena Varkkey, an Associate Professor at the University of Malaya.

3:05 PM

Front Row

tbc

3:20 PM

Front Row

Straddle #2025 is a 4-day artistic exchange program by Five Arts Centre, focusing on identity exploration through dance. We find out more about the inaugural event from artists based in Kuala Lumpur and Montreal.

4:05 PM

Health & Living

Doctor in the House: More than 10 million people worldwide get TB every year, and more than 1 million die from the disease. We look at why TB is still a threat in Malaysia.

5:00 PM

Top 5 at 5

6:00 PM

Popcorn Culture

7:00 PM

Just For Kicks

8:00 PM

Bar None

9:00 PM

The Selector