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Finally, A National Rare Disease Policy - So What’s Next?

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

17-Sep-25 16:00

Finally, A National Rare Disease Policy - So What’s Next?

The Ministry of Health recently unveiled the long-awaited National Rare Disease Policy, which is aimed at improving access to care for people living with rare diseases at every point in their lives. How does it live up to expectations? What are the gaps that remain? And how can the upcoming Budget 2026 play a part in ensuring that the policy is turned into action? We speak to Nadiah Hanim Abdul Latif, President of the Malaysia Rare Disorders Society, and Prof Dr Thong Meow Keong, a consultant paediatrician and clinical geneticist, to explore these questions.

Image Credit: Shutterstock

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann


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Categories:  health policy

Tags:  health justice,  the bigger picture,  health & living,  rare disease,  rare disorder,  budget 2026,  people with disabilities,  equity, 


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