Lysosomal Diseases

Ir Lee Yee Seng, Malaysian Lysosomal Diseases Association | Rachel Siew, MPS IVa patient | Nicole Lim, mother of MPS II patient

09-May-16 16:00

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There are about 50 different types of lysosomal storage diseases (LSD). LSDs are life-threatening and the average lifespan of patients does not exceed 20 years. Enzyme replacement therapy is now available for seven types of LSDs but each individual ERT cost averages about RM1 million a year. Hear all about lysosomal diseases, why treatment is so costly and how everyone can help.

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Tags: health and living, lysosonal disease, enzyme replacement therapy, metabolic disease, bone marrow, Malaysian Lysosomal Disease Association, MLDA

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