BFM 89.9

HIGHLIGHTS 
Podcast  >  Bigger Picture  >  Health & Living  >  Orphan Drugs As A Lifeline for Rare Diseases

Orphan Drugs As A Lifeline for Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

15-Jan-25 16:00

Orphan Drugs As A Lifeline for Rare Diseases

When speaking to individuals with rare disorders or their families, it’s not uncommon to hear about the diagnostic odyssey they’ve been through just to get a name for what they’re going through. But what happens after that? We want to look beyond the diagnosis, to understand what are the challenges they still face. Today, we’ll be exploring what access to medicines looks like for rare disorders and the importance of orphan drugs to these individuals and their families.

Image credit: Shutterstock

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann


This and more than 60,000 other podcasts in your hand. Download the all new BFM mobile app.

Categories:  managing diseasewellnesshealth policy

Tags:  the bigger picturehealth and livingrare diseaseorphan drugsgenetic diseases





Play / Pause

Listen now : BFM 89.9 -- The Business Station

Today’s Shows



6:00 AM

The 6AM Stretch

Thought-provoking discussions on ideas, people and events shaping our lives.

7:00 AM

World Market Watch

David Chow, Director of Investment at Azure Capital tells us where international markets are heading.

7:15 AM

Morning Brief

We recap global and local headlines from today's papers and portals.

7:30 AM

Morning Brief

Christopher Wong, FX Strategist at OCBC shares his analysis on the 2026 commodities outlook.

7:45 AM

Morning Brief

Dato' Foo Yong Hooi, President of Persatuan Agensi Pekerjaan Asing, explains why approved foreign worker quotas are not translating into actual worker arrivals.

8:00 AM

The Breakfast Grille

Captain Cheah Sin Bi, CEO of Orkim Berhad discusses the company's evolution, listing exercise as well as its plans for the RM92 million it hopes to raise.

8:30 AM

Morning Brief

Alan Cheong, Executive Director, Savills Singapore gives us an outlook for Singapore's property market in 2026.

8:45 AM

Morning Brief

Khor Yu Leng, economist from Segi Enam Advisers, discusses what the recent shifts in the palm oil industry mean for Malaysia.

9:00 AM

Opening Bell

(REPEAT) David Chow, Director of Investment at Azure Capital tells us where international markets are heading.

9:15 AM

Opening Bell

(REPEAT) We take a look at the FBM KLCI as well as regional capital markets.

9:35 AM

Pinnacle Perspectives

Poonam Goyal, Senior Retail & eCommerce Analyst at Bloomberg Intelligence, breaks down Nike’s leadership moves, strategic pivots, and what it will take to restore growth.

10:05 AM

Open For Business

Ajoy Gopinath Prabhu, Symbiotica Specialty Ingredients

11:05 AM

P&L

Georg Chmiel, Chmiel Global Advisory

12:00 PM

Enterprise Explores

1:00 PM

The Breakfast Grille Repeat

Our flagship show, we feature both game-changers and groundbreakers in the hot seat.

2:05 PM

Discovery Hour

An eclectic selection of BBC shows, curated with variety in mind.

3:05 PM

Earth Matters

Selangor’s proposed Batu Arang waste-to-energy incinerator has sparked major community concern. Two residents explain the risks, the lack of official response, and why safer alternatives are needed.

4:05 PM

Health & Living

Many of us put off sleep and spend the night in front of screens, but how exactly is it affecting our brain? Tune in to find out.

5:00 PM

Top 5 at 5

6:00 PM

Today I Learned

We speak to a Palestinian theologist about how Western Christianity and colonialism shaped Palestine, and the traditions of interfaith tolerance and solidarity that continue to define its society.

7:00 PM

Just For Kicks

8:00 PM

A Bit of Culture