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Orphan Drugs As A Lifeline for Rare Diseases

Orphan Drugs As A Lifeline for Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Dr Sangita Dharshini Terumalay, Consultant Paediatric Neurologist | Yap Sook Yee, Parent and SMA Advocate

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Dr Nurul Izzaty Hassan, Mother and Lecturer

Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

Orphan Drugs And Rare Diseases

Orphan Drugs And Rare Diseases

Associate Prof Dr Asrul Akmal Shafie, Program Chairman of Discipline of Social & Administrative Pharmacy, Universiti Sains Malaysia

Doctor in the House: Spinal Muscular Atrophy

Doctor in the House: Spinal Muscular Atrophy

Dr George Lee, Consultant Urologist | Edmund Lim, founder and parent of child with spinal muscular atrophy

 
 




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