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Orphan Drugs As A Lifeline for Rare Diseases

Orphan Drugs As A Lifeline for Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Dr Sangita Dharshini Terumalay, Consultant Paediatric Neurologist | Yap Sook Yee, Parent and SMA Advocate

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Dr Nurul Izzaty Hassan, Mother and Lecturer

Proposed Constitutional Amendments Could Leave Devastating Impact on Stateless Children

Proposed Constitutional Amendments Could Leave Devastating Impact on Stateless Children

Maalini Ramalo, Director of Social Protection, Development of Human Resources for Rural Areas (DHRRA) Malaysia

Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

Popek Popek Parlimen: An Act of God

Popek Popek Parlimen: An Act of God

Covid-19: Helping Orphaned Children

Covid-19: Helping Orphaned Children

Datin P.H. Wong, Director, Childline Foundation

We’re Not Doing Enough To Help COVID Orphans

We’re Not Doing Enough To Help COVID Orphans

Sharmila Sekaran, Chairperson, Voice of the Children

Orphan Drugs And Rare Diseases

Orphan Drugs And Rare Diseases

Associate Prof Dr Asrul Akmal Shafie, Program Chairman of Discipline of Social & Administrative Pharmacy, Universiti Sains Malaysia

Doctor in the House: Spinal Muscular Atrophy

Doctor in the House: Spinal Muscular Atrophy

Dr George Lee, Consultant Urologist | Edmund Lim, founder and parent of child with spinal muscular atrophy

OrphanCare Foundation turns 10

OrphanCare Foundation turns 10

Noraini Hashim, Trustee, OrphanCare Foundation | Yuzila Yusof, Chief Operating Officer, OrphanCare Foundation

Rare Disease Day 2018

Rare Disease Day 2018

Various

Would You Teach Your Kids To Fight?

Would You Teach Your Kids To Fight?

The Morning Run Crew

The Stigma of Being an Orphan

The Stigma of Being an Orphan

Ng Geok Bee, General Manager, SHELTER | Jia Huai, Ex-Resident

Why Orphanages Are Bad

Why Orphanages Are Bad

Sonya Troller-Renfree, University of Maryland

Adoption and Reintegration

Adoption and Reintegration

 
 




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Listen now : Best of Evening Edition: (REPEAT) We speak to Balan, founder of a...

Today’s Shows



11:00 AM

Best of Enterprise

(REPEAT) Alexandre Salesse, Partner at BCG, explains how the "Single Buyer" model and "Take or Pay" contracts have created a reliability gold standard at the cost of future flexibility.

12:00 PM

Just For Kicks

(REPEAT) The pundits look ahead to match week 27 of the EPL, featuring the big match between the wounded Arsenal against their neighbours in turmoil, Tottenham Hotspur.

1:00 PM

A Bit of Culture

(REPEAT) Does good always triumph over evil? Kam, Sheryll and Dhanya will unpack that, as well as talk about AI caricatures and whether it's cool to show off your partner on social media.

2:00 PM

Ringgit & Sense

(REPEAT) Dr. Mohaini Ahmad Basri, licensed financial planner with Wealth Vantage Advisory talks about EPF dividends, and who gets the most benefit from them.

2:30 PM

The Property Show

(REPEAT) Dr. YM Cheng, Founder and Principal Consultant of ChineseZodiacFengshui.com, discusses Fengshui outlook for Commercial and Residential properties for the upcoming Year of the Horse.

3:00 PM

Best of The Bigger Picture

(REPEAT) With TB cases on the rise and clusters reported across the country, we speak to a respiratory physician to break down what you need to know about the disease and precautions to take.

4:00 PM

Best of Evening Edition

(REPEAT) We speak to Balan, founder of a lion dance troupe and seasoned performer, about his journey to becoming part of this art form and what led to his passion for it.

5:00 PM

BBC World Service

This episode of The Life Scientific features Caroline Smith, Head of Collections and Principal Curator of Meteorites at the Natural History Museum, home to one of the finest meteorite collections in the world.