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When Treatments & Trials for Rare Disorders Exclude Malaysia

When Treatments & Trials for Rare Disorders Exclude Malaysia

Catherine Jayasuriya, Founder & Executive Director, Coalition Duchenne | Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society

Is Gene Editing The Silver Bullet for Rare Disorders?

Is Gene Editing The Silver Bullet for Rare Disorders?

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

 Living With A Rare Disorder & Going Through Puberty

 Living With A Rare Disorder & Going Through Puberty

Azhar Talib, Parent and President, Prader-Willi Syndrome Association of Malaysia | Professor Dr Prof Dr Muhammad Yazid Jalaludin, Consultant Paediatric Endocrinologist

Can We Cure #2: Genetic Disorders?

Can We Cure #2: Genetic Disorders?

Dr Azlina Ahmad Annuar, Neurogeneticist, Universiti Malaya | Dr Nishakanthi Gopalan, Bioethicist, Universiti Malaya

Orphan Drugs As A Lifeline for Rare Diseases

Orphan Drugs As A Lifeline for Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

NCD Chronicles #24: Living With A Disease With No Known Cause

NCD Chronicles #24: Living With A Disease With No Known Cause

Shawn Sharif, Living with IIH | Dr Nazima Shadaht Ali, Consultant Ophthalmologist | Professor Datin Dr Norlinah Ibrahim Mohamed, Consultant Neurologist

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Spinal Muscular Atrophy: From Carrier Screening To Life After Diagnosis

Dr Sangita Dharshini Terumalay, Consultant Paediatric Neurologist | Yap Sook Yee, Parent and SMA Advocate

NCD Chronicles #20: “I Would Bleed Even While Sitting Down” (Living With Haemophilia)

NCD Chronicles #20: “I Would Bleed Even While Sitting Down” (Living With Haemophilia)

Hariee Prabakaran, Living with Haemophilia | Premalatha Narayanan, Hariee’s mother | Dr Zulaiha Muda, Consultant Paediatric Haematologist-Oncologist

Because Feelings Matter #31: Diary of a Work-From-Home Dad

Because Feelings Matter #31: Diary of a Work-From-Home Dad

Mohammad Yazid Kamal Baharin, Comic Artist and Father

Doctor in the House: Disability Days - Are We Getting Anywhere in Advancing Disability Rights?

Doctor in the House: Disability Days - Are We Getting Anywhere in Advancing Disability Rights?

Dr George Lee, Consultant Urologist | Dato' Dr Amar-Singh HSS, Consultant Paediatrician

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Because Feelings Matter #27: “Tak Ada Peluang Langsung Untuk Bernafas”

Dr Nurul Izzaty Hassan, Mother and Lecturer

Because Feelings Matter #25: World Children’s Day Special (Part 1)

Because Feelings Matter #25: World Children’s Day Special (Part 1)

Branden Lim, 13

NCD Chronicles #11: Finding Hope in Motor Neuron Disease

NCD Chronicles #11: Finding Hope in Motor Neuron Disease

Albert Koo, Living with Motor Neuron Disease | Dr Loh Ee Chin, Consultant Palliative Care Physician

Doctor in the House: A New Treatment for Neurofibromatosis in Malaysia

Doctor in the House: A New Treatment for Neurofibromatosis in Malaysia

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Carol Lim, Living with Neurofibromatosis

Rare Disease Day 2023: The Story of Baby Athif with Spinal Muscular Atrophy

Rare Disease Day 2023: The Story of Baby Athif with Spinal Muscular Atrophy

Nur Azizah Zamri | Mohd Farhan bin Mohd Sait

Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

 
 




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Listen now : The Breakfast Grille Repeat: Siti Kassim, Human Rights Lawyer & Tengku Mohamed...

Today’s Shows



6:00 AM

The 6AM Stretch

Thought-provoking discussions on ideas, people and events shaping our lives.

7:00 AM

World Market Watch

Vishnu Varathan, Head of Economics & Strategy, Mizuho Bank, tells us where international markets are heading.

7:15 AM

Morning Brief

We recap global and local headlines from today's papers and portals.

7:30 AM

Morning Brief

Denise Wong, Bloomberg Intelligence gives us an outlook of China's infrastructure sector.

7:45 AM

Morning Brief

Adrian Pereira, Executive Director of the North-South Initiative on foreign workers in the country

8:00 AM

The Breakfast Grille

Human Rights Lawyer Siti Kassim and Tengku Mohamed Fauzi Hamid of SUHAKAM discuss critical issues facing Orang Asli communities.

8:30 AM

Morning Brief

Dr Hasdy Haron of the National Transplant Resource Centre weighs in on Malaysia’s urgent organ donor shortage and potential reforms to save more lives.

8:45 AM

Morning Brief

(REPEAT) We dive into the local and international news that matters to you.

9:00 AM

Opening Bell

(REPEAT) Vishnu Varathan, Head of Economics & Strategy, Mizuho Bank, tells us where international markets are heading.

9:15 AM

Opening Bell

(REPEAT) Denise Wong, Bloomberg Intelligence gives us an outlook of China's infrastructure sector.

9:35 AM

Ringgit & Sense

Fazrul Farouk, licensed financial planner, I-Max Financial talks about the proposed monthly withdrawals from EPF for retirees,

10:05 AM

Open For Business

LIGNO Biotech's co-founders on how they turned a PhD project on Tiger Milk Mushroom into a profitable and patented RM13M business with global ambitions.

11:00 AM

Tech Talk

Prateek Pashine, Chief Enterprise Business Officer at Maxis, discusses an IDC study on AI adoption in Malaysia — where we stand regionally, what’s holding us back, and how businesses can drive real AI transformation.

12:00 PM

Enterprise Explores

Knight Frank's Allan Sim on why Malaysia's logistics real estate market (warehouses) is holding steady despite a regional slowdown and what it means for investors.

1:00 PM

The Breakfast Grille Repeat

Siti Kassim, Human Rights Lawyer & Tengku Mohamed Fauzi Hamid, Vice Chairman, The Human Rights Commission of Malaysia (SUHAKAM).

2:05 PM

Discovery Hour

3:05 PM

Beyond the Ballot Box

How Gendered Disinformation Is a Threat to Women’s Political Participation

4:05 PM

Health & Living

The recently published National Health and Morbidity Survey 2024 focussing on nutrition revealed just how bad Malaysians’ diets are. Now that’s probably not a surprise to most of us but the question remains: what can we do about it? Here to help us break down how we can easily improve our diets and make sure we get all the nutrients we need is dietitian Prof Dr Winnie Chee.

5:00 PM

Top 5 at 5

6:00 PM

Talkback Thursday

Have you experienced or seen bullying at your place of work?

8:00 PM

BBC World Service

This episode of Crowd Science explores all things light - from its properties to its potential.