Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Associate Professor Dr Adli Ali, Consultant Paediatric Immunologist | Bruce Lim, President, Malaysian Patients' Organisation for Primary Immunodeficiencies (MYPOPI)

Catherine Jayasuriya, Founder & Executive Director, Coalition Duchenne | Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Azhar Talib, Parent and President, Prader-Willi Syndrome Association of Malaysia | Professor Dr Prof Dr Muhammad Yazid Jalaludin, Consultant Paediatric Endocrinologist

Dr Azlina Ahmad Annuar, Neurogeneticist, Universiti Malaya | Dr Nishakanthi Gopalan, Bioethicist, Universiti Malaya

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Shawn Sharif, Living with IIH | Dr Nazima Shadaht Ali, Consultant Ophthalmologist | Professor Datin Dr Norlinah Ibrahim Mohamed, Consultant Neurologist

Dr Sangita Dharshini Terumalay, Consultant Paediatric Neurologist | Yap Sook Yee, Parent and SMA Advocate

Hariee Prabakaran, Living with Haemophilia | Premalatha Narayanan, Hariee’s mother | Dr Zulaiha Muda, Consultant Paediatric Haematologist-Oncologist

Mohammad Yazid Kamal Baharin, Comic Artist and Father

Dr George Lee, Consultant Urologist | Dato' Dr Amar-Singh HSS, Consultant Paediatrician

Dr Nurul Izzaty Hassan, Mother and Lecturer

Branden Lim, 13

Albert Koo, Living with Motor Neuron Disease | Dr Loh Ee Chin, Consultant Palliative Care Physician

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Carol Lim, Living with Neurofibromatosis